Today is Jan 14th, 2019.
I think because a lot of the other people I was with at the treatment center got better, so my case was a fluke. I think I have just had it longer. Or maybe it is just because it's not necessarily the bacteria that is the problem, but the remaining damage that is irreparable. So it's a totally separate issue. When we looked at my darkfield we did not see any bacteria, so I just don't think there is ANY organisms invading me, so I have a feeling that it is just a major problem neurologically.
Nonetheless, I am currently trying Stephen Buhner herbal protocol from Lymes and Bartonella currently which I have been on for about 2 weeks and I may be herxing. I will continue this for about 6-12 months depending on the results.
For the nerve pain, I have tried Topomax with no results and I have tried Gabapentin with no results. Next my doctor wants to try hypnotherapy. I have no inflammation which is visible in my lab tests under the sed rates. So that is the biggest key to my pain mystery.
All together the treatment cost about $30,000 and was mentally torture and kept me from my regular life, job, and family for 6 weeks, but it worked for most people and it was worth a shot. For most people- they got their lives back again. So it was worth it for them and I was lucky to see them come back to life and it gives me hope that I will find something that will work for me. I just have to figure out what that actual problem is currently in my body. I hope this has helped someone.
